Chronic pain is much more than “pain alone”

People often do not understand what it is like to live with fibromyalgia and other invisible chronic diseases that cause chronic pain. They have experienced regular pain in their lives; Almost everyone has experienced it, somehow, but they have never had to deal with lasting pain. Actually, I tried to look for the “official” labels for the different…

Fibromyalgia and leg pain. Everyone should know.

Do you suffer with fibromyalgia leg pain? The pain that is associated with the tender points and the trigger points in multiple sites? Although we often refer to them as tender   POINTS  , they are actually rather tender   AREAS  . I still have to meet someone with fibromyalgia who simply has a   POINT  of pain or sensitivity. (However, both tender points and areas of…

What is notalgia paresthetica?

Notalgia Paresthetica Notalgia paresthetica (NP) is a nerve disorder that causes an intense and sometimes painful itching in your back. It mainly affects the area between the shoulder blades, but the itch can spread to your shoulders and chest. The name of this disorder comes from the Greek words “notos” (“back”) and “algia” (“pain”). What…

Grieving the Person I Was Before Chronic Illness

BY:Gloria Shannon Sitting at the end of my bed, it suddenly thumps me across the chest like a ton of bricks. My lip trembles, I can feel the lump in my throat and I have to stop myself before the tears flow. I’m struggling to put on my socks and quickly I’m reminded that my…

8 warning signs of fibromyalgia Everyone should remember.

As indicated above, generalized pain is associated with fibromyalgia. Having said that, there are about 18 tender points common in fibromyalgia sufferers, and anyone with 11 or more is likely to have the condition.These sensitive areas will cause severe pain in a small area when pressure is applied, and typically include spots on the hips,…

It’s Not Fibromyalgia. Most Likely You are Not Aware

I stood in my closet this morning, looking around as though I’d never been there. I couldn’t remember what I was doing, why, or what I should do next. So I stood still, waiting for it to come to me. Moments before I had been violently panting like a wild animal, bent over in pain…

Fibromyalgia, cold increases my pain …

A common complaint of people with fibromyalgia and chronic fatigue syndrome is that cold weather makes their pain worse. The cold seems to enter the bones and make everything tense and hurt. Medical science has found a possible reason for this: an abnormally high number of sensory nerves in the circulatory system. In fibromyalgia, cold…

Living with fibromyalgia and difficulty speaking

By Sue Jaye Fibromyalgia is a disease that has many symptoms and some of which can be confusing for people. So, if you thought it only affects the body’s energy levels and the only problem is muscle and tissue pain, you were wrong. This type of disease can affect almost every aspect of a person’s life…

ER Safety Tips for Ehlers-Danlos Syndrome Patients

By Ellen Lenox Smith, Columnist People living with Ehlers-Danlos Syndrome (EDS) are often afraid to go to a hospital emergency room, due to a lack of understanding in the ER staff on how to safely care for them. I myself recently had another negative experience, one that almost killed me. In the process of being…

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