If you love a person with fibromyalgia, you experience severe pain that varies from day to day and from one hour to another. We cannot predict that. So we want you to understand that sometimes things have to be canceled at the last minute and that bothers us as much as you do.
We want him to know that we must learn to accept our body with its limits, and it is not easy. Fibromyalgia cannot be cured, but we try to relieve symptoms every day. We ask not to suffer.
We often feel overwhelmed and cannot bear more stress than we do. If possible, do not add additional stress to my body.
Although we see well, we do not feel well. We have learned to live with constant pain most of the time. When you see us happy, it does not necessarily mean we have no problems, we just treat that. Some people think that we cannot be so bad if we are good. Pain is not a chronic “invisible” disease and it is not easy for us to have it.
Please understand, because we cannot work and we are not lazy. Our fatigue and pain are unpredictable and that is why we have to adapt our way of life. Something that seems simple and easy to do is not for us and can cause us a lot of fatigue and pain. It’s not necessarily something we did yesterday, we can do it today, but that doesn’t mean we can’t do it either.
Sometimes we are depressed. Who would not be depressed by strong and constant pain? It has been found that fibromyalgia occurs with the same frequency as any other chronic pain condition. It hurts us to be depressed, but we are depressed by the pain and the inability to do what we have used. We also feel bad in the absence of support or understanding from doctors, family and friends. Please understand, with your support and your help, relieve my pain.
While we sleep through the night, we don’t get enough rest. People with fibromyalgia have poor sleep quality, which harms the worst pains of the day.
For us, it is not easy to remain in the same position (even the seats) for a long time. This causes us many problems and we need time to recover. Why not leave certain activities, we know that this factor would harm us. Sometimes it is good to know the consequences that will entail.
We don’t go crazy if sometimes we forget simple things, what we say, someone’s name or if we say the wrong word. These are cognitive problems that are part of fibromyalgia, especially on days of severe pain. It is something strange for you and me. But we laugh together and help maintain our sense of humor.
Most people with fibromyalgia are very familiar with this disease, some doctors and others, because we had to educate ourselves to understand our body. So, please, if you offer me a “cure,” don’t do it. Not because I don’t appreciate your help or not, but because I know and have tried many things.
We are very happy when we sleep on a day with little or no harm, when we do something we haven’t done for a long time, when we understand it.
We really appreciate everything you have done and can do for me. Including your efforts to inform and understand. Little things matter to me a lot and I need your help. Be kind and patient. Remember that in this body always tired, I am still. I try to learn to live day by day with my new limits and wait for tomorrow. Help me laugh and see the wonders that God gives us.