Fibromyalgia, a slow death: a disease that can take up to 10 years to be diagnosed

Fibromyalgia is not seen, it suffers. Fibromyalgia is invisible, but the millions who suffer from it are not.

Because fibromyalgia has become a health problem.

Although institutions continue to look elsewhere, fibromyalgia is a reality that continues to grow, which does not include social class, cultural level, age or cardinal point. It can start in childhood and get worse over the years, with the appearance of new symptoms.

Far from being psychological, as many have insisted, the latest research in the world suggests that it is a neuroimmune disease and, therefore, compromises all the body’s systems and may appear to more than thirty different symptoms. The most disabling are pain and chronic fatigue.

“Fibromyalgia is a chronic and debilitating disease of unknown cause and without effective treatment.”

For many years, he has avoided this definition and preferred to accuse the liar, nurse, neurotic, depressive, deceitful, victimist patient … so much that most of society has believed that fibromyalgia is synonymous with storyteller and all forums. They speak in a dismissive and suspicious manner of these patients.

The people involved are exposed to a “popular trial” with a verdict: “imprisonment for life,” sentenced to lock themselves in their home, not to prepare, not to smile … because if they do, they are redesigned. “It won’t be so bad when everything is fixed,” “Look how he laughs, it won’t hurt much …”

In addition to getting sick, society questions their right to live and be happy. People with physical difficulties who are successful in sports or personal are examples to follow and inspire admiration, and no one doubts their disability. This admiration and empathy is evident in all diseases, except fibromyalgia.

The patient with fibromyalgia who manages to be happy, despite the disease, and succeeds, despite the great difficulties, is not appreciated for his strength and his desire to excel, nor is he an example of life. It is simply a reason to question his diagnosis and, together with him, the professionalism of the doctor who gave it to him.

The fact that the harsh reality of this harsh disease has been denied for so long has caused irreparable physical and mental damage to many affected people.

treatment

In terms of health, polypharmacy has been abused and drug addicts have been created, and the fact that their environment and society are “nothing” has caused family break-ups, harassment and dismissals. and unfavorable prayers. Inability to work.

When, despite all these collateral damage, the patient is immersed in depression, he who remains obsessed with denying the evidence is confirmed by the fact that “his problem is psychological.”

Years ago we could justify this “inappropriate treatment” due to ignorance of the origin of the pathology, but after thirty years, it no longer works. Although we still do not know what the origin is, although there is still no measurable marker, it is time to take responsibility and start looking for it.

Because fibromyalgia has gone from a health problem to a social problem. Affecting 5.4% of the population, 92.7% are women at risk of social exclusion.

“Fibromyalgia is a chronic and disabling condition of unknown cause and without effective treatment.” This is a simple and easy to understand sentence, it is time to accept it, take responsibility and act accordingly. for example, investing in research and resources for the proper treatment of the disease.

Fibromyalgia is not just a pain, as some say, as if it wasn’t much. It affects the whole body, so the patient walks from specialty to medical specialty for years, until finally he gets a diagnosis that does not help much because the prescribed medication does not make the pain go away.

The result is an extraordinary expense for the health system and a waste of time for the patient, which adds to its symptoms the side effects of polypharmacy and frustration. Frustration is also shared by doctors who want to help the patient, but feel helpless because of lack of time in consultations and resources to attend them in a multidisciplinary way as they deserve.

The solution is to have the political will to invest in the research and training of expert doctors who manage these units. This form of care would be less expensive for the system and would improve the patient’s quality of life and, therefore, the family and professional environment. Perhaps one of the reasons why it is not studied is because “fibromyalgia does not die …”

With fibromyalgia, you don’t live, you survive

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